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We Are Brave Together

A SUPPORTIVE COMMUNITY FOR MOMS OF CHILDREN WITH DISABILITIES AND ALL UNIQUE NEEDS

Dear Subscriber First Name,

Organization makes me happy. HAPPY in all caps!

I love to de-clutter and organize and label bins and baskets. It makes me feel peaceful and that life is somehow in control. I know this is FALSE peace, and yet I admit it, I spend daily energy on these pursuits of organization and tidiness in my home.

What’s truly happening here is, I am trying to be ok, and have my atmosphere feel ok, even though life is kind of chaotic at times.

“If I am productive and organized and on top of everything and everyone, then I will suffer less. And my struggles will be less. And I will feel enough. I will feel good about myself and my mothering.”

These are the lies we buy into.

What might become possible if we let go of control, if we stopped focusing on our producing, working, helping, serving, all these accomplishment behaviors to receiving more?

What if we paused and went inward? Maybe less suffering & less overwhelm IS POSSIBLE if we stopped to think about where the wound of not-enough-ness comes from, that fuels our hamster wheel of behaviors?

It feels scary though. What if I go poke around inside my emotional life and inner child and all I wind up doing is crying??? Well, actually you are freeing yourself by getting it OUT of your body. Crying is a release, and actually contributes to your healing. (I am reminding myself of this as well!) There is so much talk these days about what we hold in the body. Our own mindsets, reactivity, and negativity can be linked to unprocessed trauma and grief. It is traumatic to raise a kid with extra, unique or extreme needs. You know what you have been through. It’s a lot. I see you. I see your hurts and wounds. It is SO UNDERSTANDABLE.

If you need to dive deeper, we have wonderful resources (amazing humans!) within We Are Brave, who can walk you through this. Fellow Caregiving Moms who are coaches and therapists. Ready to help.

Let us know if you are inspired to do some loving, compassionate, healing work. YOU DESERVE IT.

With love & sisterhood,

 

APRIL’S BRAVE MOM

WHO: Kassy Merilatt, 34
DIAGNOSIS OF CHILD: My child has been diagnosed with ASD Level 2, Intellectual Disability and ADHD
FAVORITE SONG: Sunday Sermons by Anne Wilson
FAVORITE FOOD: Anything Italian
FAVORITE QUOTE: “Be the change you wish to see in the world”-GhandI
WHAT SHE WOULD SAY TO A MOM GRAPPLING WITH A NEW DIAGNOSIS: Take your time to process what’s going on. Make sure you have a support system to talk to. Reach out for help. It’s important for you to also get self care.

PARENTING TIP

Pressing the Reset Button

Oftentimes we get caught up in life, dealing with the numerous “unexpecteds” that come our way, feeling like we are at the mercy of whatever we are faced with, leaving us not always being the parent that we strive to be. We’ve all been there and I’ve learned that those times are the perfect times to press the metaphorical reset button, pause for a second, take a deep breath and check in with one’s intention for that moment.

How do you know when you need to press that reset button? I find it helpful to begin making a connection with your current patterns as a parent that upon reflection, you wish you had done differently…like raising your voice or your energy, being snarky, getting into a power struggle, slamming doors, threatening to take away electronics for the rest of your child’s life, etc. This is not for the purpose of shaming or judging oneself at all! It is so that you can notice and create awareness in real time so that you can do something different to create patterns that feel better.

By the way, these old patterns or strong reactions usually have an underlying cause such as exhaustion, lack of self care, boundaries that have been crossed, frustration around something in one’s life, etc. I consider this all to be good to know so you can better take care of yourself! Recognizing your child’s patterns or when they have strong reactions can also be super helpful so that you can be less frustrated and more curious about what else might be going on with them - sensory overload, overstimulation, executive functioning challenges, tired, hungry, thirsty, disappointed, embarrassed, etc.

The great thing about the metaphorical reset button is that once you realize that you’ve started down a path that doesn’t feel good, like noticing your tone has changed or that your voice is raised, you can take a deep breath, press pause and then say something like, “Ack! I don’t like how this is going at all. I don’t like how I’m talking to you or how I’m feeling in my body. I need a minute to calm myself and then can we please press the reset button so that we can start over and make different choices?” (If you’ve got a younger child or one who likes to get silly, you can even make a funny rewind sound as though you are rewinding through the interaction and start over.)

The simple acknowledgement of not liking how you are engaging can change the whole energy of the interaction, even if it’s just you feeling more clear headed and intentional about what you are trying to communicate.

Ex. “I’ve noticed that you’ve been on electronics more and more and it’s bothering me which is why I was raising my voice. I don’t want to handle it that way because I don’t like it when people raise their voice at me. Let’s have a chat about this to find a way for you to be on electronics in a way that feels better for me as your parent.”

Even if your child is not crazy about what you are wanting or needing, your energy has changed, you’ve become more intentional, so how it unfolds from there will feel different because you aren’t going to be trying to create change in the heat of the moment and strong emotions.

Doing this also helps to model for your child that they can be headed down a path that they weren’t even aware they were on, pause, reset and feel empowered to change words and actions to those that feel better. 

There is always an opportunity to press the reset button.

Margaret Webbmargaretwebblifecoach@gmail.com

 

WABT GROWTH!

21 Support Group Leaders
Close to 1,700 Moms in our WABT international community
Over 3k followers on IG
Over 25k listens to the Brave Together Podcast

 

If you would like to help with this year’s VIRTUAL RACE FUNDRAISER (and in-person Race Day), please email Jessica Patay @jpatay@wearebravetogether.org

 

UPCOMING SUPPORT GROUPS

All Member Support Group with Laurie Magulac *VIRTUAL*
4/26/22 | 11:00 AM PDT RSVP
4/26/22 | 7:00 PM PDT RSVP

Auckland, New Zealand Support Group *VIRTUAL*
4/27/22 | 7:30 PM NZT RSVP

Los Angeles, CA Support Group *VIRTUAL*
4/28/22 | 6:00 PM PDT RSVP

My Child’s Mental Health & Me *VIRTUAL*
5/4/22 | 12:00 PM CDT RSVP

Laguna Beach, CA Pop-up Support Group *IN PERSON*
5/7/22 | 12:30 PM PDT RSVP

Boss Ladies Raising Kids with Special Needs *VIRTUAL*
5/10/22 | 11:00 AM MST-Phoenix RSVP

Manhattan Beach, CA Support Group *IN PERSON*
5/11/22 | 7:00 PM PDT RSVP

South Bay, CA Support Group *IN PERSON*
5/13/22 | 6:30 PM PDT RSVP

My Child’s Mental Health & Me - South Bay, CA *IN PERSON*
5/14/22 | 2:00 PM PDT RSVP

Los Angeles Support Group *IN PERSON*
6/5/22 | 10:30 AM PDT RSVP

*NEW!* Moms of Clubfoot Cuties Support Group *VIRTUAL*
6/16/22 | 6:00 PM MDT RSVP

UPCOMING VIRTUAL RESOURCE GROUPS

*NEW!* Financial Planning for the Special Needs Family
Saturdays, 4/16 at 10:00 AM; 6/18, 9/17, 12/17 at 2:00 PM PDT RSVP
*please note the alternate time on 4/16*

*NEW!* Move With Megan
Every Tuesday 3/1 - 5/31 | 9:00 AM PDT RSVP

Behavior Interventions
3/19, 3/26, 4/23, 4/30 | 1:00 - 2:30 PM PDT RSVP

IEP Collaboration and Communication Strategies
3/15, 5/17, 9/13, 12/6 | 12:00 - 1:00 PM PDT RSVP

 

RESOURCE CORNER

LOMAH Disability Podcast: Conservatorship vs Supported Decision Making
Conservatorship has long been the route to providing supports to disabled individuals with they turn 18. However, a new option called supported decision is an alternative that supports the person in making their own decisions rather than giving up rights through the conservatorship option.

LOMAH Disability Podcast: A New Way to Find and Fund Adult Services
Most adult supports are chosen via eligible providers on HCBS waiver lists. However, some states have been toying with a new method that offers more flexibility and choice. In this conversation we explore what families have and have not liked about the newly rolled out Self Determination Program and why our family has decided to move away from provider lists and into this new option of funding supports.

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We Are Brave Together, P.O. Box 3002, Palos Verdes Peninsula, CA 90274, United States

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