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We Are Brave Together

A SUPPORTIVE COMMUNITY FOR MOMS OF CHILDREN WITH DISABILITIES AND ALL UNIQUE NEEDS

Dear Moms of WABT,

Us Baby Southern Californians do not get to experience that much change in seasons like the rest of the world.

In fact as I write this, it is still shorts weather for Ryan.
I am longing for “sweater weather,” (cue in Saturday Night Live skit with Maya Rudolph and Amy Poehler).

I like changes in weather, changes in fashion, changes in meals, changes in practices, changes in my playlists, changes in my yoga pants.

I do not like, however, changes in caregiving.

Ryan is gaining weight again. He still looks “fine” to the outside world. And yet gaining 40 pounds in 2 years’ time, (per the pediatrician’s office records), is not FINE. If it keeps going this way, he could end up with diabetes or other medical issues.

Is it because his growth hormone dose was reduced to a maintenance dose 18 months ago? Is it because he is sneaking more food? Or grown two inches taller?

All of the above?

Whatever the reason, I must CHANGE now. We are in a season of change. More vigilance with the locked kitchen. More strict recommendations with sitters if they are feeding him or giving him a snack. More care in all the food choices. More protein and veggies, less carbs.

Treats? Rare. Appetizers with family dinners? Nope. Stop that.

Sigh…caregiving can be so heavy, and requires us to constantly bend and flex and shift.

Are you in a season of change? Changing habits or practices or routines? Internal change? Good growth change? Health or house changes?

The more we want things to stay the same, the less likely they are to stay the same. The more we accept, the more I accept, that change is inevitable, the more peace we have.

Resisting what is true, is what brings suffering.

I see you mamas. I see your bravery, tenacity, your tears, your ability to grow and adapt to all new caregiving changes. You are so loved.

With love and sisterhood,

OCTOBER’S BRAVE MOM

WHO: Corrina Santacruz
AGE/DIAGNOSIS OF CHILD: 3 months old, optic nerve hypoplasia (legally blind) autistic, diabetes insipidus, pituitary & adrenal insufficiency
FAVORITE SONG: my favorite song is by UB40 ‘red red wine’ but I also love hip hop
FAVORITE FOOD: steak and shrimp! My ultimate combo
FAVORITE QUOTE: “God only gives special needs babies to SPECIAL MOMMAS!”
WHAT CORRINA WOULD SAY TO A MOM GRAPPLING WITH A NEW DIAGNOSIS: Know that you’re not alone! It may be difficult at first, but know that life isn’t over... it just took another route. I recommend all moms to look up the video “Welcome to Holland” on your tube. It will give you a better outlook on what it’s like being a special needs mom.

Donate to our 2022 Biggest Fundraiser of the Year!!

It’s almost time for our Brave Friends to walk or run a 5k or 10k on Race Day. We hope you’ll consider donating to one of our amazing members as they run or walk for We Are Brave Together on October 15th.

 DONATE 

A huge thank you to all of our amazing race sponsors!

UPCOMING SUPPORT GROUPS

Auckland, New Zealand Support Group *VIRTUAL*
10/12/22 & 10/26/22 | 7:30 PM NZT RSVP

All-Member Support Group *VIRTUAL*
10/25/22 | 10:00 AM PDT RSVP

Manhattan Beach, CA Support Group *IN PERSON*
10/26/22 | 10:00 AM PDT RSVP

Shawnee, KS Support Group *IN PERSON*
10/26/22 | 6:00 PM CDT RSVP

Moms of Clubfoot Cuties *VIRTUAL*
11/5/22 | 12:00 PM MDT RSVP

My Child’s Mental Health & Me *VIRTUAL*
11/2/22 | 12:00 CDT RSVP

My Child’s Mental Health & Me - South Bay, CA *IN PERSON*
11/5/22 | 10:30 AM PDT RSVP

UPCOMING VIRTUAL RESOURCE GROUPS

Move With Megan
Tuesday, 8/16/22 | 9:00 AM PDT RSVP

Financial Planning for the Special Needs Family
Saturday 12/17 | 2:00 PM PDT RSVP

IEP Collaboration and Communication Strategies
Tuesday 12/6 | 12:00 - 1:00 PM PDT RSVP

Managing Our Own Distress: DBT Skills for Parents
Tuesdays, 9/13-10/18 | 5:30 PM PDT RSVP

Offering the DBT Skills Course again for FREE!! (6 weeks)
If you--or your child/teen/adult child have intense emotions and want to learn how to manage anxiety, please attend this course. $300.00 value. With DBT Expert and LCSW, Matt Metcalf

BRAVE TOGETHER PODCAST

Meet Hannah Parsons, the new editor/producer of Brave Together Podcast!

Hannah Parsons is an award-winning audio editor born and raised in Northern California and currently based in Los Angeles. She has a BFA from CSU Fullerton and has worked in podcasting for over a decade. Her resilient son, Obi, was born in 2021 with a limb difference and other symptoms as part of a rare syndrome called VACTERL. At WABT she finds purpose bringing together her professional expertise with her personal experience as a mother and caregiver. 

“My favorite thing about editing/producing the Brave Together podcast is getting to benefit from it's #1 promise, making moms like me feel less alone.” -Hannah

 

PARENTING TIP

October Parenting Tip - What am I making it/this mean?

If you have read my past parenting tips, you will know that I LOVE asking myself questions! This is because it puts my thinking mind to work in a way that is more helpful than gathering evidence to support negative or painful thoughts. This brings me to this month’s parenting tip and it is asking the question,

“What am I making it/this mean?”

This one question has given me so much information when I notice that I am in my head thinking about something that is creating tension in my life. If I'm able to recognize when this is happening, I can get curious to see all that I'm making something mean just from my own thoughts!!

A parent at my child's school could have innocently made a comment such as, “Oh! You should sign X up to do Y because Z.” and all of a sudden, I am spinning around in thoughts that usually aren’t true. "What am I making it mean?"

I am making it mean:

  • I’m not doing enoug

  • My child is different and/or behind developmentally and will never catch up.

  • They are better parents than I am.

Things like this are so common among parents (and in relationships) and it usually creates defensiveness, self-judgment and feelings of urgency. This question can be a stick in the wheel of those thoughts and from there, you can shift into a different, more positively focused perspective which brings me to more questions...

"What actually matters in this moment?"

and

"What do I know to be true?"

Being kind and loving with yourself is so important here because there is a part of us that may believe these thoughts AND when you zoom out and really question their truth, you can see that they aren’t true at all. Comparing yourself to others is never a good use of time, energy or attention because every child is different, every family is different and every situation is different. So what matters to one person might not matter to another.

If you notice that you are in your head thinking about something, get curious about what you are making it mean and then flip those thoughts around and use those additional questions to find evidence to contradict those unhelpful stories.

What actually matters?

Utilizing what you know about your child and your family.

What do you know to be true?

Think of all that you’ve done throughout the years to support your family. Remember that you have no idea what the future holds for your child and that it is more helpful to acknowledge that they are on their own developmental timeline and that’s okay! We all are! Celebrate what they have been able to do that perhaps you didn’t think was possible.

Putting your time, energy and attention into those questions can shift you from beating yourself up to feeling a sense of love, empowerment and pride.

If after you’ve gotten curious about what you are making something mean and feel pulled towards doing something about it, you’ll feel greater clarity around why you are doing it.

Play with this and experience the difference that this can have on your daily life.

Any questions, margaretwebblifecoach@gmail.com.

Margaret Webb
www.margaretwebblifecoach.com

RESOURCE CORNER

Podcast: The Right Questions to Ask Before, During, and After an ADHD Diagnosis

Podcast: How to Fix Dinner When You’re Never Home via The Lazy Genius

Video: If you have a kid in high school or in your school district’s transition program, listen to Transition Expert, Dr. Gwen Palafox:
Individualized Transition Plans (ITPs) -Writing Plans that are Effective and Compliant

What to Do, and Not to Do, When Your Child Won't Go to School (The Washington Post)

6 Strategies to Help Neurodiverse Students Fully Engage in Class (Edutopia)

When Students' Basic Needs are Met by Community Schools, Learning Can Flourish (KQED Mindshift)

Preventing Autistic Burnout and ADHD Burnout (Psychology Today)

Your Home, Your Sanctuary: REAL SIMPLE Discusses Mental Health and Living Space (Verywell Mind)

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wearebravetogether.org

We Are Brave Together, P.O. Box 3002, Palos Verdes Peninsula, CA 90274, United States

A Non-Profit Organization

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