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We Are Brave Together

A SUPPORTIVE COMMUNITY FOR MOMS OF CHILDREN WITH DISABILITIES AND ALL UNIQUE NEEDS

Dear Moms of WABT,

"Get in touch with your yulabanda."​​​​​​​​
"Bellybutton to your spine."​​​​​​​​
"Floint your toes."​​​​​​​​

​​​​​​​​These are funny cues in yoga class that we often hear.​​​​​​​​

​​​​​​​~~~And it's a lot like ADULTING~~~​​​​​​​​

​​​​​​​​We have no idea what it means, so we fake it as we look around and see what everyone else is doing.​​​​​​​​

​​​​​​​​No matter how old I get (and I am in my 6th decade, do the hard math), I still sometimes wonder:​​​​​​​​

​​​​​​​​HOW IS IT that I have all this responsibility?​​​​​​​​
Anyone else?​​​​​​​​
Does anyone else feel like they are faking it from time to time?​​​​​​​​
Looking around, wondering what we are "supposed" to be doing?​​​​​​​​

​​​​​​​​And then moments of sage wisdom and perspective and maturity hit and we rest a little.​​​​​​​​​​​​​​​​

It is easy to question ourselves in the altered motherhood journey: can I really do this? Am I really the best mother for this child? Am I strong enough? Smart enough? Patient enough?​​​​​​​​

​​​YES! Yes you are! Yes I am!​​​​​​​​
All the resources you need you have within you.​​​​​​​​
And I do, too. ​​​​​​​​

It's accessible via slowing down, listening, having compassion on ourselves and our situation, and breathing. It will come.​​​​​​​​
The answers, the strength. the peace. You got this.​​​​​​​​

With love & sisterhood,

AUGUST’S BRAVE MOM

WHO: Cindy Kaplan
AGE/DIAGNOSIS OF CHILD: Mira is 20 years old and has a diagnosis of Cerebral Palsy-Spastic quadriparesis and microcephaly
FAVORITE SONG: My favorite song is dependent on so many factors! Most of the time it is a song that moves me: to joy, to sadness, to unexplained tears, to dance.
FAVORITE FOOD: A large bowl filled to the brim with fresh bright greens and other vegetables along with some crunch like a handful of roasted almonds. This along with some delicious goat cheese and freshly baked bread - that someone else has made.
FAVORITE QUOTE: Maybe the journey isn't about becoming anything. Maybe it's about unbecoming everything that isn't really you so you can be who you were meant to be in the first place. -Paulo Coelho

UPCOMING SUPPORT GROUPS

All Member Support Group with Laurie Magulac *VIRTUAL*
Morning session: 8/23/22 | 10:00 AM PDT RSVP
Evening session: 8/23/22 | 7:00 PM PDT RSVP

Los Angeles Support Group *VIRTUAL*
8/25/22 | 6:00 PM PDT RSVP

Shawnee, KS Support Group *IN PERSON*
8/31/22 | 6:00 PM CDT RSVP

My Child’s Mental Health & Me *VIRTUAL*
9/7/22 | 12:00 PM CDT RSVP

South Orange County Support Group *IN PERSON*
9/10/22 | 2:30 PM PDT RSVP

We are launching the Portland, OR Support Group with Health/Life Coach Kari Morin!
*NEW!* Portland, OR Support Group *IN PERSON
*
9/15/22 | 10:00 AM PDT RSVP

My Child’s Mental Health & Me - South Bay *IN PERSON*
9/17/22 | 10:30 AM PDT RSVP

Austin, TX Support Group *VIRTUAL*
9/20/22 | 10:30 AM CDT RSVP

Los Angeles Support Group *IN PERSON*
9/22/22 | 10:00 AM PDT RSVP

South Bay Support Group *IN PERSON*
9/23/22 | 7:00 PM PDT RSVP

UPCOMING VIRTUAL RESOURCE GROUPS

Move With Megan
Tuesday, 8/16/22 | 9:00 AM PDT RSVP

Yoga Classes for South Bay Locals *IN PERSON*
Sundays, 7/24, 8/21, 9/18 | 6:45 PM PDT RSVP

Financial Planning for the Special Needs Family
Saturdays, 6/18, 9/17, 12/17 | 2:00 PM PDT RSVP

IEP Collaboration and Communication Strategies
3/15, 5/17, 9/13, 12/6 | 12:00 - 1:00 PM PDT RSVP

*NEW!* Conservatorships
Wednesday, 9/14 | 5:30 PM PDT RSVP

Sex Education for Parents and Caregivers
9/15 & 9/22 | 11:00 AM PDT/1:00 PM CDT RSVP

*NEW!* Special Needs Trusts
Wednesday, 9/21 | 5:30 PM PDT RSVP

Empowering Parents with Transition Planning and Adult Preparedness
Tuesday 9/20 | 6:00 PM PDT RSVP

Offering the DBT Skills Course again for FREE!! (6 weeks)
If you--or your child/teen/adult child have intense emotions and want to learn how to manage anxiety, please attend this course. $300.00 value. With DBT Expert and LCSW, Matt Metcalf

Managing Our Own Distress: DBT Skills for Parents
Tuesdays, 9/13-10/18 | 5:30 PM PDT RSVP

This podcast helps explain about DBT:
TILT Parenting: Raising Differently Wired Kids: Pat Harvey on DBT and Strategies for Parenting Emotionally Intense Teens

 

RANCHO MIRAGE RETREAT

November 11 - 13, 2022

COST: $200

Speaker: Kara Ryska, Life Coach and host of
The Special Needs Mom Podcast
Two lovely homes side by side
Total of 16 women
3 retreat scholarships
Registration Day: Sept 22nd at 9 am Pacific Time

NOTE: Detailed emails about this retreat will be going out weekly. Check your email please!

 

2022 RACE FUNDRAISER

Train to walk or run a 5k or 10k and join us in Palos Verdes on Race Day, October 15th. Fundraising is ideal, but not required to join the 2022 Brave Team! Registration fee is only $40. You will receive a fun tee-shirt to wear on race day!

 REGISTER 

Thanks to our current corporate sponsors for the 2022 Race Fundraiser:

Malaga Bank | CMS Creative Management | Village Runner
Injectability Clinic | RMA Design | Palos Verdes Magazine
Palos Verdes Medical Group | Motive Workforce | Wholesome Media
Pediatric Minds | The Patay Family | The Dyer Family
Fusion Academy | Kefi Yoga | Other Parents Like Me
Morgan Stanley | Cox Law Group | Journeys Counseling
Across The Pond Vacations |Torrance Memorial Medical Center
Lollipop Boutique | Alandrea Boutique

 

PARENTING TIP

August Parenting Tip: Pin-Balling

When my son was younger, I was exhausted from spending all of my energy bouncing from one thing to another while never really feeling like anything got accomplished. One day, I had one of those rock bottom kind of days but instead of feeling defeated, I got fired up and began to get curious, observing myself to see what was draining my energy.

As a result of this curiosity, I noticed that I was “pin-balling” through each and every day. Huh? Pin-balling is a term I came up with and it is a lot like what it sounds like…just in human form. I’d wake up in the morning and just like in a game of pin-ball (me being the ball), I was shot out into the day, reacting to whatever or whoever I bumped into or caught my attention next. I was constantly in motion, taking care of everyone else’s wants and needs, without consideration of the bigger picture of what actually mattered for our family.

The thing about pin-balling through life is that it feels productive but it’s actually not. It also doesn’t feel good because there is no intention or purpose behind it. I was operating in “reaction” mode until the end of the day when the “game” was over and I’d go to bed frustrated because despite the exhaustion, when I looked around, it felt like I didn’t accomplish anything and then I’d be annoyed with everyone around me. Things had to change for this mom to feel better about life as a parent.

Pin-balling was keeping me from having what I wanted and being the mom I wanted to be. While it was normal for me to be all over the place thanks to my squirrel brain, I actually wanted to be more intentional because how I was approaching life day after day clearly wasn’t working. I wanted to be effective and efficient. I wanted ease and joy. And I wanted these things to exist in the parenting relationship I had with my child and the partnership I had with my husband.

As with any new habit or change one is trying to incorporate, at first it felt clunky as I would find myself pin-balling around but once I noticed this was happening, I would pause, take a deep breath, check in with what I was wanting for the next minute or two (keeping it small helped!) and focus my energy and attention on that. It became easier and my family started to get used to not having their wants or needs met right at that instant. I would tell them things like, “I am going to finish putting this away and then I will help you with x.” Again, it felt awkward and sometimes seemed like taking a few seconds to open something wouldn’t be a big deal but I allowed myself to lean into the discomfort and everyone was okay.

The more I played with this, the better I felt and as with most things I learn about when focusing attention on myself, I learned a few things that have been helpful as a parent.

  • I start the day with an intention of two or three things that are important for me and my family and writing them down on a piece of paper to not only help keep me focused but also so others are aware of them. They don’t necessarily need to be involved in them but they also know that they are important to me and that I’m using a strategy to support myself in getting things done.

  • My son also has pin-balling tendencies especially when overwhelmed or when he doesn’t have a preferred task he is focused on. To support him during those times, we use executive functioning strategies that work for him, like making a list or breaking things down into categories. Being very specific is also helpful so that he is aware of what needs to be done because quite often, “clean the bathroom” doesn’t mean to him what it does for me. Ha

If you are a fellow pin-baller or have one in your life, please be kind and loving with yourself (or your loved one), check in with intentions, keep things realistic, doable and specific, and celebrate the difference in how it feels to have energy and attention going towards completing something.

Margaret Webb
www.margaretwebblifecoach.com

RESOURCE CORNER

If you need help with summer meals like me!!
The Lazy Genius Podcast: How to Fix Summer Dinners
(I had an aha moment listening to this podcast episode. I always say I don’t like cooking these days. But it’s actually not that I don’t like cooking. It’s really that I don’t like—choosing—what’s for dinner.)

The Special Needs Mom Podcast: Anxiety and Your Never Ending To Do List with Kara Ryska

GLOBAL GENES
2022 RARE Patient Advocacy Summit
Rare Life. Bonded Together
September 12-14, 2022 | San Diego, CA (and virtually!)

ADHD Resource: Silver Linings Stuffies
We're a line of stuffed animals & companion books aimed at giving children the tools to cope with mental health conditions, such as ADHD, anxiety & depression. The narrative within each book focuses on normalizing their experiences through a community of relatable characters.

“How can I help?”

Created by Effie Parks, Host of Once Upon a Gene Podcast

Click here to download the full PDF!

Ed Sage School - Accredited K-12 remote, interactive, educational opportunity. Director, Beth Silver
www.edsageschool.com
www.educationsage.net
bethcarolsilver@gmail.com


Break Relief Sitters and Nannies provides the ultimate child care services for families who absolutely love traveling together, but crave the freedom of enjoying the adult aspect of their vacation. We also service SoCal and the surrounding areas.  We are Autism/Special needs focused but we cater to everyone.
https://www.breakreliefsitters.com/

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wearebravetogether.org

We Are Brave Together, P.O. Box 3002, Palos Verdes Peninsula, CA 90274, United States

A Non-Profit Organization

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