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We Are Brave Together

A SUPPORTIVE COMMUNITY FOR MOMS OF CHILDREN WITH DISABILITIES AND ALL UNIQUE NEEDS

Dear Moms of WABT,

As I was driving home from hot yoga today, this song came on the radio. And it always melts me. I love her voice, the sound, but most importantly, the lyrics. Remember the days when we used to wait and wait for albums or CDs to come out…JUST so we could read the actual lyrics and sing along till we memorized them? Ah…the ancient days. 😊

Well, if there was one song to memorize, it is this one. It’s a spiritual song by the lovely Lauren Daigle. But I want you to listen to it DIFFERENTLY. Pretend that who she is talking to is the WABT Brave Mom Community.

“YOU SAY” is us, all of us moms looking each other in the eyes and sending out love and truth and strength to one another.

Here are some of the lyrics:

I keep fighting voices in my mind that say I'm not enough
Every single lie that tells me I will never measure up
Am I more than just the sum of every high
and every low
Remind me once again just who I am because I need to
You say I am loved when I can't feel a thing
You say I am strong when I think I am weak
And you say I am held when I am falling short
And when I don't belong, oh You say I am yours
And I believe
Oh, I believe
What you say of me
I believe
You say I am loved when I can't feel a thing
You say I am strong when I think I am weak
And you say I am held when I am falling short
When I don't belong, oh you say I am yours
And I believe
Oh, I believe
What You say of me
Oh, I believe

The community of WABT is truly here for you. We have created a judgment-free, sacred space for you. We remind each other of our strength, our courage, our tenacity, our amazing love and compassion for our families, our need for one another. Connection and community are critical to not only surviving altered motherhood, but also thriving in altered motherhood. Jump in. Get involved. Whether online (Virtual support groups, the private Facebook Group, engaging in our Instagram posts, listening to the podcast) or in-person through support groups or retreats, JUST DO IT. Knowing and FEELING that you are not alone will boost you and give you strength for one more day.

With love and sisterhood,

SEPTEMBER’S BRAVE MOM

WHO: Gracie Benedith-Cane
AGE/DIAGNOSIS OF YOUR CHILD: Wani, age 15/Septo-Optic Nerve Dysplasia. Wani is legally blind.
FAVORITE SONG: I’m a music aficionado: I love all Genre’s from the 80’s! Some 90’s. Anita Baker, Andrea Bocelli, Otis Reading, Bob Marley, old Boleros like Orlando Contreras, Los Terrícolas
FAVORITE FOOD: Grilled Salmon w/veggies
FAVORITE QUOTE: You’re an extra special mom when you have an exceptional needs child.
WHAT YOU WOULD SAY TO A MOM GRAPPLING WITH A NEW DIAGNOSIS: Surrender ALL to God and ask for guidance. Watch and observe your child; give them the freedom to hone who they are then help them gain their independence.

UPCOMING SUPPORT GROUPS

All-Member Support Group *VIRTUAL*
9/27/22 | 10:00 AM PDT RSVP

Auckland, New Zealand Support Group *VIRTUAL*
9/28/22 | 7:30 PM NZT RSVP

Shawnee, KS Support Group *IN PERSON*
9/28/22 | 6:00 PM CDT RSVP

My Child’s Mental Health & Me *VIRTUAL*
10/5/22 | 12:00 PM CDT RSVP

We are launching the Portland, OR Support Group with Health/Life Coach Kari Morin!
*NEW!* Portland, OR Support Group *IN PERSON
*
10/14/22 | 10:00 AM PDT RSVP

Moms of Clubfoot Cuties *VIRTUAL*
10/19/22 | 12:00 PM MDT RSVP

UPCOMING VIRTUAL RESOURCE GROUPS

Move With Megan
Tuesday, 8/16/22 | 9:00 AM PDT RSVP

Yoga Classes for South Bay Locals *IN PERSON*
Sundays, 7/24, 8/21, 9/18 | 6:45 PM PDT RSVP

Financial Planning for the Special Needs Family
Saturdays, 6/18, 9/17, 12/17 | 2:00 PM PDT RSVP

IEP Collaboration and Communication Strategies
3/15, 5/17, 9/13, 12/6 | 12:00 - 1:00 PM PDT RSVP

Offering the DBT Skills Course again for FREE!! (6 weeks)
If you--or your child/teen/adult child have intense emotions and want to learn how to manage anxiety, please attend this course. $300.00 value. With DBT Expert and LCSW, Matt Metcalf

Managing Our Own Distress: DBT Skills for Parents
Tuesdays, 9/13-10/18 | 5:30 PM PDT RSVP

This podcast helps explain about DBT:
TILT Parenting: Raising Differently Wired Kids: Pat Harvey on DBT and Strategies for Parenting Emotionally Intense Teens

2022 RACE FUNDRAISER

It’s almost time for our athletes to walk or run a 5k or 10k on Race Day. We hope you’ll consider donating to one of our amazing members as they run or walk for We Are Brave Together on October 15th.

 DONATE 

Thanks to our current corporate sponsors for the 2022 Race Fundraiser:

Malaga Bank | CMS Creative Management | Village Runner
Injectability Clinic | RMA Design | Palos Verdes Magazine
Palos Verdes Medical Group | Motive Workforce | Wholesome Media
Pediatric Minds | The Patay Family | The Dyer Family
Fusion Academy | Kefi Yoga | Other Parents Like Me
Morgan Stanley | Cox Law Group | Journeys Counseling
Across The Pond Vacations |Torrance Memorial Medical Center
Lollipop Boutique | Alandrea Boutique

PARENTING TIP

Refilling Your Child's Metaphorical Energy Tank

As we are about to enter into a new season of the year, Autumn, which typically brings along with it changes in schedules and different activities, I think it’s important to remember that this can have a major impact on our children’s abilities to emotionally regulate themselves.

I’m sure you’ve had times where you are so excited to see them after school or practice and they just fall apart. Hopeful thoughts of spending relaxing family time together is replaced by meltdowns and frustration. I get it and have some insights into why this is and what you can play around with to see if it makes a difference for you and your child.

Prior to having my son, I viewed things like PE, lunchtime, recess and extracurricular activities as fun opportunities to play, get energy out and enjoy less structured time with friends. Now when I view them through the lens of someone who has sensory challenges, struggles a bit with fine motor and gross motor activities as well as needing support with social interactions when he was younger, I see just how much energy these times require in order for them to to get through them.

Energy spent trying to regulate when the gymnasium smells and sounds of balls and kids and whistles echo.

Energy spent trying to regulate when the lunchroom has a million different strong smells and kids are talking loudly, not to mention the excited energy that can be felt down the hall of a large gathering of kids who have had to sit quietly for most of the morning.

Energy spent trying to regulate at recess when social rules change constantly and expectations of doing well at a sport when your hands and feet don’t always do what you want them to do.

Energy spent trying to regulate at practice when the coach is talking about things and you are a visual learner so everything they say just flows right on through your brain and then they get frustrated when you don’t do what they told you to do.

While there isn’t anything we can do about the things that are requiring this energy spent, we can play around with how to support our children in refilling their metaphorical energy tanks. This can be done by providing time for them to do something that comes easily to them, something they enjoy and feel competent in.

Here is a list of possible ideas that I’ve created both from my experience with my son and from the experience of clients…

  • Reading

  • Singing

  • Dancing

  • Bouncing

  • Swinging

  • Climbing

  • Baking or cooking

  • Running or walking

  • Swimming, showering, bathing

  • Biking

  • Puzzles

  • Legos

  • Building

  • Writing

  • Drawing, painting, coloring, etc.

  • Knitting, crocheting, weaving, needlepoint or cross stitch, etc.

  • Organizing

  • Gaming or Screen time (You can create a structure or place limits on this if it becomes an issue with them getting off of screens to do other things OR if it ramps them up.)

Think about what some of these things are for your child and you might even make a list so you can try different things to see if something works better than others. Also, don’t forget my three favorite questions that always help me to be more curious and flexible in parenting,

  1. What works for my child/our family?

  2. What doesn’t work for my child/our family?

  3. What is one thing we can try differently the next time to see if it works better for my child/our family?

If nothing seems to work, it always helps me to have awareness around what is actually going on - my child isn’t just trying to be difficult, they have nothing left in their reserves and home is a safe place to let it all out. There are times when I just have to let the waves of my son’s strong emotions go until they are gone but when that is the case, I set boundaries for myself (mainly not taking it personally and keeping myself physically safe) despite his attempts to get me tangled up in his discomfort. I can love and support him while not getting caught up in it - not easy AND is the ultimate meditation as far as I’m concerned. (Will share more about this in October!)

I hope this provides you with a different perspective for challenging times and that it helps you to stay calm, see what is “actually” going on (energy tank empty) and feel more prepared to support yourself and your child.

Margaret Webb
www.margaretwebblifecoach.com

BRAVE TOGETHER PODCAST

Brave Together Podcast Season 4 dropped Sept 7th! Did you catch the new season??

Seeking FUNNY STORIES from the trenches of motherhood for the podcast. Call into Speakpipe https://www.speakpipe.com/BraveTogetherPodcast and leave a message about your funny or most embarrassing moments. OR send in an audio file to jpatay@wearebravetogether.org

 

RESOURCE CORNER

Podcast: AT Parenting Survival Podcast: Parenting | Child Anxiety | Child OCD | Kids & Family

Podcast: The Choices We Have with Dr. Edith Eger

Podcast: Back to School with The Lucky Few

Podcast: How to Manage Your Time this Fall

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wearebravetogether.org

We Are Brave Together, P.O. Box 3002, Palos Verdes Peninsula, CA 90274, United States

A Non-Profit Organization

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