


Retreat for Mothers of Children with Prader-Willi Syndrome 2/27/26 - 3/1/26 *coming soon*
Dates: Friday, February 27 - Sunday, March 1, 2026
Retreat Coordinators: Jessica Patay & Paige Rivard
Location: Destin, Florida
Speaker: Dr. Zoe Shaw, Author, Speaker, Podcast Host
VIRTUAL INFORMATION MEETING ON 10/17 - SIGN UP HERE https://www.wearebravetogether.org/gatherings/p/virtual-information-meeting-for-2026-retreat-for-mom-of-children-with-prader-willi-syndrome-101725
We are overjoyed to announce our very first DIAGNOSIS-SPECIFIC Retreat in 2026! đź’™
Next February, we’re hosting a special weekend retreat exclusively for mothers of children (any age) with Prader-Willi syndrome.
To all the incredible PWS moms - this weekend is for YOU. A chance to connect, share experiences, and find community with others who truly understand your journey.
This retreat is generously sponsored by Soleno Therapeutics
Cost: $325 retreat fee covers:
2 nights housing (in a home or hotel - you may share a room but will not share a bed)
5 meals
4 Speaker Sessions
All the snacks and drinks you want!
Brave Bag (goodie bag with self-care items)
Please Read the Policy and Procedures Below before you register!
Please only purchase one registration spot per transaction.
Items are not reserved by beginning the registration process and stock availability is not assessed until the checkout process has been completed.
Scholarship Applications Due January 4 at midnight Pacific Time
Fill out scholarship ApplicationHERE
Registration Date: Thursday January 8 at 9:00 AM Pacific Time
*PLEASE NOTE: Retreat will say “Unavailable” until exactly 9 AM on 1/8*
Dates: Friday, February 27 - Sunday, March 1, 2026
Retreat Coordinators: Jessica Patay & Paige Rivard
Location: Destin, Florida
Speaker: Dr. Zoe Shaw, Author, Speaker, Podcast Host
VIRTUAL INFORMATION MEETING ON 10/17 - SIGN UP HERE https://www.wearebravetogether.org/gatherings/p/virtual-information-meeting-for-2026-retreat-for-mom-of-children-with-prader-willi-syndrome-101725
We are overjoyed to announce our very first DIAGNOSIS-SPECIFIC Retreat in 2026! đź’™
Next February, we’re hosting a special weekend retreat exclusively for mothers of children (any age) with Prader-Willi syndrome.
To all the incredible PWS moms - this weekend is for YOU. A chance to connect, share experiences, and find community with others who truly understand your journey.
This retreat is generously sponsored by Soleno Therapeutics
Cost: $325 retreat fee covers:
2 nights housing (in a home or hotel - you may share a room but will not share a bed)
5 meals
4 Speaker Sessions
All the snacks and drinks you want!
Brave Bag (goodie bag with self-care items)
Please Read the Policy and Procedures Below before you register!
Please only purchase one registration spot per transaction.
Items are not reserved by beginning the registration process and stock availability is not assessed until the checkout process has been completed.
Scholarship Applications Due January 4 at midnight Pacific Time
Fill out scholarship ApplicationHERE
Registration Date: Thursday January 8 at 9:00 AM Pacific Time
*PLEASE NOTE: Retreat will say “Unavailable” until exactly 9 AM on 1/8*