“I KNOW MY PARENTS NEED A BREAK, BUT I NEED A BREAK, TOO.”

Just as caregiving moms can sometimes feel unseen, siblings in families navigating disability and complex support needs can have experiences that are easy to overlook. So much time, attention, and energy naturally goes toward the family member who requires the most care, and siblings can sometimes find themselves adjusting to the realities of caregiving alongside their parents.

There is no simple way around this reality. But there is an opportunity to understand it.

Siblings have their own needs, feelings, experiences, and voices within the family. They deserve space to talk about what life feels like for them, to have their experiences acknowledged, and to know that their place in the family matters. They should not have to feel guilty for needing attention, taken for granted because they are “doing well,” or defined by the role they may play within their family.

At the same time, growing up alongside disability or complex support needs can shape siblings in meaningful ways. Many develop deeper compassion, empathy, patience, resilience, perseverance, and a keen understanding of difference and inclusion. As with any sibling relationship, challenges will arise, but so can connection, perspective, and strength.

So, let’s pause and listen to every member of the household.

Understanding what siblings need—and what they need to hear from their parents—is an important first step. When we make space for their experiences and listen without judgment, we create opportunities for greater understanding, connection, and support throughout the family.

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